tag:blogger.com,1999:blog-4171391806681426297.post4892180159402776645..comments2023-10-10T10:07:49.315-04:00Comments on Postcards From Paradise: Rest In Peace, MomJune Keithhttp://www.blogger.com/profile/08171174002983023531noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-4171391806681426297.post-18708250523518943012013-12-19T20:23:42.432-05:002013-12-19T20:23:42.432-05:00My husband and I feel awful when we remember the t...My husband and I feel awful when we remember the times we talked to Mom begging her to go for a walk, exercise, pep up! She was a very energetic person and then all of that energy was gone by this mysterious illness. It is an enormous challenge for the person with PSP and for those who love them. It was a terrible and very sad time of our lives, and awful for my formerly fit-as-a-fiddle mother. I'm relieved it's over. I have deep compassion for those going through this nightmare. My advice, if there is anything at all to offer, is to take it one day at a time. Love him and enjoy the part of him that is still here. Now, over 3 years since my mother's death, we only remember the good things about her. We don't think about her final days. We think about all the days she lived in the full force of her complex personality. She lived an exciting and, in many ways, enviable life! She left us with a lot of love and many wonderful memories. I am so sorry to hear of your situation. One day at a time . . .June Keithnoreply@blogger.comtag:blogger.com,1999:blog-4171391806681426297.post-68305314651917120372013-12-18T12:32:17.967-05:002013-12-18T12:32:17.967-05:00My father has this condition but like your mom'...My father has this condition but like your mom's it went unrecognised for a long time. We like you thought he was getting lazy and depressed and after intense check ups this was confirmed by the medics they told us to give him tough love so we nagged him to do things. I felt so horribly guilty when we finally learnt the truth. All wecan do now is love hme and care for him.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4171391806681426297.post-26896938403489939672011-05-08T16:21:00.643-04:002011-05-08T16:21:00.643-04:00I, like Forest, followed the link from the so very...I, like Forest, followed the link from the so very helpful curepsp.org forum to read your story. My husband has this horrible disease, and has just enough apathy to prevent him from really comprehending the toll it takes. You've given Forest some wonderful advice and I'll take it to heart, too. May your dear mother rest in peace.Jo-Ann Sanbornhttps://www.blogger.com/profile/04917343131871008640noreply@blogger.comtag:blogger.com,1999:blog-4171391806681426297.post-57016022848176858772011-05-06T18:04:55.783-04:002011-05-06T18:04:55.783-04:00Hello Forrest: I am so sorry that this disease has...Hello Forrest: I am so sorry that this disease has found your wife. Don't be afraid of failing her. You won't. Her own body will fail her and you will be a friend and comfort. The PSP forum has been invaluable to me. Since Mom died I haven't been on, but during her disease process I was there frequently and it was like sitting in a big circle of loving people, all ready to give of their wisdom, strength and hope. Ask any question you have on the forum. You will get many answers. If I had to do this again I would make sure of my options. For example, people who are legally blind are able to get Social Security disability. You didn't say how old your wife is. <br /><br /> Stay close to the forum is my advice. And take care of yourself, honor your strength and devotion. Honor what you are and what you do -- and try not to dwell on whether or not you are good enough. You will be good enough. And don't be afraid to ask for help. You won't fail her. <br /><br />JuneJune Keithhttps://www.blogger.com/profile/08171174002983023531noreply@blogger.comtag:blogger.com,1999:blog-4171391806681426297.post-64471685683415096782011-05-06T02:30:47.732-04:002011-05-06T02:30:47.732-04:00June,
I read your post on the PSP Forum and had to...June,<br />I read your post on the PSP Forum and had to follow the link. My wife suffers the condition, diagnosed a little over a year ago with symptoms first noticed as vision problems and a dimenished ability to concentrate starting about four years ago. Fortunately, I was able to retire a little early and we were able to move closer to her family so her sister can help withher care in the future. <br /><br />I am so sorry you also had to deal with this killer. I've always been a strong person, but now I'm very afraid of failing her. <br /><br />Thanks for writing this piece. <br /><br />ForrestForrest Sealehttps://www.blogger.com/profile/12319147540711963611noreply@blogger.comtag:blogger.com,1999:blog-4171391806681426297.post-88646070020207388072011-05-05T12:30:17.190-04:002011-05-05T12:30:17.190-04:00I love this story. Thank you so much for sharing....I love this story. Thank you so much for sharing. My mother died at the age of 33. she had so many unexplained illnesses; one of which I believe was bipolar disorder. She loved life; but, struggled with it. RIP Beverly.Anonymousnoreply@blogger.com